“Those who qualified for the State funding ABA waiver need to have 32 hours of EIBI therapy per week.”
I almost choked on my snack sized pretzels.
I’d arrived first at the parent orientation for my son’s therapy. ABA stands for “Applied Behavior Analysis.” This is one type of therapy that works really well for kids with autism. The reason for so many hours is EIBI or Early intensive behavioral intervention. This means get them as much therapy as possible while they’re young so it’ll have a higher chance of succeeding.
Tristan was diagnosed with high-functioning autism last July, just after his 3rd birthday. We waited one year on a waitlist to be approved for this funding, because we definitely couldn’t afford therapy on our own at $200 or more per hour. His name was finally at the top of the list and I couldn’t be more happy!
Arriving at orientation, I donned my name tag and grabbed a handful of pretzels. I didn’t know what to expect. Would there be lots of parents here? Should I have made Luke come with me? The chairs slowly filled up. Three other moms filled those chairs. Moms going through the exact same thing as me. But, none of us talked to each other. We all stared at our phones until the presentation started.
We introduced ourselves briefly when pointed to and then listened to one of the intake coordinators tell us about ABA therapy. It sounds awesome. Then they dropped the bomb. Tristan would be in therapy 32 hours per week, for a total of at least 120 hours per month. I was excited! This is going to change his life for the better. School (4K), combined with ABA is going to change his life.
The significance of that was mind-blowing!
Then that bomb made impact as the common sense washed off some of my elation. I work full-time. Luke works full-time. Will one of us have to quit our jobs? Will we be struggling to pay bills again? WHAT ARE WE GOING TO DO?
What are we going to do…
After freaking out for a little bit (at home, not at orientation. I am good at being ALL SMILES in public, even if I’m freaking out on the inside), I took a deep breath. Luke and I prayed about it. No, we still don’t know exactly what we’re going to do, but whatever happens with our jobs or money, one thing is certain.
This therapy is going to change Tristan’s life for the better. Anything is worth that.
Hey all. I haven’t posted a Tristan update in a while. He is doing great, but I am ready for school to start! He is ready too, I think. I am not the best at routine and tend to just “go with the flow” when I’m home on nights and weekends. I am working at getting better at that.
Later this week, I have another author interview planned so be excited!